Apparently I had been misinformed. With particular reference to the instructions from the hospital, what I should have been told was:
Taking BP once a week or so is plenty enough monitoring.
The important reading is diastolic - systolic isnít that important.
A reading of 180+ is only important if sustained over 3 or more days.
If I have a problem, go straight to hospital. Consulting the GP would just waste time.
I will continue living on a knife-edge.
Bearing in mind that just two weeks ago I had been a hairís breadth from death, and that we had no idea what my chances of survival were, what was normal and what wasnít, and what to expect, you will understand that we were completely confused and alone. And of course the doctors in the hospital have moved on to the next emergency, and arenít available to us.
Meanwhile my back was causing serious hurt, and the medication was leaving me feeling awful. In addition my kidneys were causing great discomfort at night and I was finding it difficult to breath. My BP was yo-yoing around, but of course we had been told that it didnít matter unless it was very high for days.
So we took it all day by day and wondered what was going on.
Early one morning I felt so ill I struggled down to the GP. He immediately called an ambulance, and once again I arrived at A&E. I was found a bed, and was attended by a ward doctor. Tests were done, and I waited for the consultant. As the day wore on I slowly began to improve. By the time he arrived late afternoon, I felt much better. There was a brief discussion amongst the medical team, the gist of which was that I was a bit of a worrier, viz my BP records, nothing wrong, go home. I think they thought I had called the ambulance.
I went home that evening wondering if I should have refused the ambulance called by the GP. I shall certainly consider any future suggestions very carefully.